LinkResources

These links are maintained by Jim Kenzig,
In Loving Memory of his daughter, Kristen.

Kristen artwork
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Highest Rated Links

278 links found

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Site Name DescriptionVisitedDate Added
The National Information Center for Children and Youth with Disabilities Provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22) 31,10103/29/00
The NF clinic at MGH Resources and Links 10,45403/29/00
The NHMRC Clinical Trials Centre The NHMRC Clinical Trials Center of the University of Sydney is a leader in clinical trials research in Australia 9,38304/03/00
The NYUMC Brain Tumor Research Center New York University Medical Center 17,04603/27/00
The Pediatric Brain Tumor Foundation of the United States (PBTFUS) Seeks to find the cause and cure of brain tumors in children by supporting medical research, increasing public awareness of the disease and aiding in early detection and treatment of childhood brain tumors. 17,82603/29/00
The Preston Robert Tisch Brain Tumor Center at Duke University Medical Center one of the largest and most successful in the field. It has received the highest rating of 13,48209/27/11
U.S. Department of Education/Office for Civil Rights Where to find out what rights you have as a patient in the United States 19,88303/27/00
UCLA Brain Research Institute The Brain Research Institute (BRI) is an organized research unit (ORU) within the School of Medicine at the University of California, Los Angeles. 15,56904/03/00
ULCA Neurosurgery Brain Tumor Program ULCA Neurosurgery Brain Tumor Program 202,14501/12/06
University of Maryland Brain Tumor Center Specializes in treatment and care for patients with all types of neurologic malignancies 11,96912/03/02
University of Maryland Gamma Knife Center Offers an alternative for many patients for whom traditional brain surgery is not an option 19,46712/03/02
University of Maryland Greenebaum Cancer Center A premier cancer research and treatment center devoted to providing cutting-edge therapies and individualized care for cancer patients 35,14012/03/02
University of Miami Department of Neurosurgery University of Miami Department of Neurosurgery 20,52104/03/00
University of Mississippi Brain Tumor Program 12,20508/14/04
University of Pittsburgh Center For Image-Guided Surgery Largest Gamma Knife Experience in North America 25,11003/29/00
Virtualtrials Chat Room IRC Internet Relay Chat: This loads faster, but is a little harder to set up. This can be used from WEB TV, or older computers that don`t support JAVA. Use the server: virtualtrials.com and the room: braintumor 10,80704/04/00
What is Neurofibromatosis? Informational document 11,71503/29/00
Wigs for Kids wigs for kids, donations 21,31903/04/03
Yahoo Group: Meningioma Support and Information This is a place to share our stories, our hopes, our questions, and our frustrations about meningioma brain tumors. Please let us hear from you. 20,90409/18/01
Link Removed
Ampyra Ampyra, also known as "The Walking Pill" and by the drug name dafampridine, is one of the few types of Drugs that actually attempt to help MS symptoms. Ampyra is made to help patients walk faster and achieve better balance. It does help some patients achieve much better results. 68908/03/20
Aubagio Oral treatment for Multiple Sclerosis Aubagio is an Oral Disease Modifying Drug for Multiple Sclerosis made by Genzyme also known as Teriflunomide. 61908/03/20
Brain Tumor Singapore Brain Tumor Foundation 3,07706/25/19
Braintumour Foundation The Netherlands Finding a cure by stimulating brain tumour research fund 1,32801/12/18
Cancer Hope Network Matches cancer patients or family members (including those with malignant brain tumors) with trained volunteer cancer survivors who themselves have had a similar cancer experience. 2,05501/27/16
Caregivers Guide to Multiple Sclerosis in Children From Healthline, the caregivers guide to Multiple Sclerosis in Children 70308/04/20
Cleveland Clinic Brain Tumor Research and Clinical Trials Page at Cleveland Clinic for Brain Tumor Research and Trials 92108/04/20
Copaxone Injectable for Multiple Sclerosis Copaxone is an injectable drug taken daily or three times per week for Multiple Sclerosis 67708/03/20
Flight to Remember For hospice patients, they will give you a drone video of your favorite place 62905/24/21
Follow a memoir in progress Karen writes about the lessons she learned from her son`s 20 year SUCCESSFUL rumble with a pylocytic astrocytoma. Please click on the link to follow her journey. 1,23705/04/18
Good Days Financial Assistance Program To lift the burdens of illness that force people to choose between available care and the necessities of everyday life. 72408/04/20
How Multiple Sclerosis Affects the Family A guide from Multiplesclerosis.net on how Multiple Sclerosis can affect family members 62208/04/20
Lemtrada Injectable Infusion for Multiple Sclerosis Lemtrada is an injectable infusion taken for a full week and only once per year. It is also known as alemtuzumab and like Tysabri is a monoclonal antibody drug. 67308/03/20
Mavenclad Oral Pill for treatment of Multiple Sclerosis MAVENCLAD® (cladribine) tablets is indicated for the treatment of relapsing forms of multiple sclerosis (MS), to include relapsing-remitting disease and active secondary progressive disease in adults. 64808/03/20
Mayzent Oral Pill for treatment of Secondary Progressive Multiple Sclerosis Mayzent is a pill for active secondary progressive multiple sclerosis 67808/03/20
MSBucket Resources, education, support and treatment information for Multiple Sclerosis 63508/04/20
MSworld.Org Multiple Sclerosis Organization We are here to provide support and information to people living with multiple sclerosis. MSWorld offers chat rooms, message boards, a wellness center, creative center, resource center, conference center, an arcade and social networking. 64708/03/20
Multiple Sclerosis Glossary of Terms A large glossary of all the terms used in the treatment of Multiple Sclerosis 92208/04/20
MultipleSclerosis.Net Articles and Information on Multiple Sclerosis At MultipleSclerosis.net we empower patients and caregivers to take control of MS by providing a platform to learn, educate, and connect with peers and healthcare professionals 61608/04/20
National Multiple Sclerosis Society People affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever. 65908/03/20
Needy Meds Find Help with the cost of Medicine 92408/04/20
Ocrevus Infusion for treatment of Multiple Sclerosis Ocrevus is an infusion drug for both relapsing and progressive Multiple Sclerosis.The first infusion is split over 2 weeks and consecutive infusions are given every six months. No PML has been reported as yet with this drug however it does carry some risk. 61708/03/20
Plegridy Injectable for the treatment of Multiple Sclerosis Plegridy is an injectable Disease Modifying Drug made by Biogen also nown as peginterferon beta-a. The drug is similar to Avonex only it is not given as requently. 68208/03/20
Reddit Discussions on Multiple Sclerosis Multiple Reddit users discuss Multiple Sclerosis issues 76808/04/20
Team Amber Supporting Brain Cancer Awareness. Helping one family at a time. 6,47911/28/15
Tecfidera an Oral treatment for Multiple Sclerosis Tecfidera is a pill that is usually taken twice per day for Relapsing Remitting Multiple Sclerosis 66608/03/20
The Assistance Fund The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. 94208/04/20
The Multiple Sclerosis Association of America The Multiple Sclerosis Association of America (MSAA) is a leading resource for the entire MS community, improving lives today through vital services and support. 66008/04/20
The Multiple Sclerosis Foundation The Multiple Sclerosis Foundation, known in the MS community as MS Focus, is a nonprofit organization focused on providing free services that address the critical needs of people with MS and their families, helping them maintain the best quality of life. 67908/04/20
The PAN Foundation (Patient Access Network) The PAN Foundation offers financial assistance grants for a variety of diseases and drugs 73308/04/20
The Recovery Village Grief is an intensely emotional and natural response to loss. 83609/04/18
Link Removed
Xanthoastrocytoma xanthoastrocytoma blog 84106/12/19



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