Brain Tumor Survivor: Scott L.
Last updated:1/1/2007
I would like to take a moment to introduce myself to you. My name is Scott
L. I am a 39year old male with Grade III Anaplastic Astrocytoma (Brain
Cancer). I am married and have 3 sons.
My story is as follows:
I have always been very active, enjoyed jogging, biking and swimming. I
have completed Marathons 26.2 mile runs in sub 3 hours and 45 minutes. I
had made up my mind to try a triathlon a combination of running biking and
swimming, while training for this in August of 2001, I started experiencing
a weird butterfly sensation in my chest. I went to the doctor and a battery
of tests was completed. I was told I was very healthy, and not sure what
the sensation I was having was. On February 22, 2002 I was given another
clue to this sensation, I had a grand mal seizure while driving, ending in a
very horrific accident. An accident that the paramedics and fire department
personnel that arrived, look at the scene, and reported the accident to the
traffic reports as a possible fatality. After several CT scans and MRI's,
a "lesion" was detected on the right side of my brain. Due to my seemingly
good health and age the doctors were not sure what this "lesion" was. It was
decided that it most likely was caused from some type of swelling possibly
from an infection. I was to be treated with strong intravenous antibiotics
for two weeks and then another MRI would be done to see if there was
improvement in the swelling and lesion. To everyone's surprise the MRI
showed absolutely no change. At this point a neurosurgeon was brought in and
a biopsy of the "lesion" was performed. The subsequent results were not
good. It was determined that I had a brain tumor and was classified as an
Astrocytoma, probably a grade II. We were told that radiation would be
necessary and possibly chemotherapy. He felt that surgery to remove the
cancer was risky and he would not do it. Thankfully, he said that he knew
that surgery was being done in these situations and would help us locate an
experienced surgeon in this field, at one of the teaching hospitals. We were
then referred to Stanford Medical Center for a consultation on April 5th
2002. We were told that surgery usually provides the best outcome in this
type of cancer along with radiation and chemotherapy. The neurosurgeon felt
confident that he could remove a large portion of the cancer. I was
scheduled for surgery on April 11th 2002. After surgery the portion of
cancer that was removed was tested again and it was determined that it was
indeed Anaplastic Astrocytoma, However, it was a grade III not a grade II.
This we were to learn is a significance difference. A grade III is much more
aggressive and resistant to treatment. I was told that the average survival
for this type of cancer is 1-3 years with treatment and surgery. My reaction
at that time, and still today is "That is not good enough I will do what it
takes to buy time!" Thus my journey, life with cancer begins. After 6 weeks
of daily radiation treatments and 12 cycles (one per month for 5 days) of
chemotherapy I am still on my journey. It has now been 23 months since my
diagnosis. I have been fortunate in the fact that at each bi-monthly MRI
there has been no significant change or sizable growth detected in my
cancer. I have now been taken off the chemotherapy to allow my body to
rebuild its strength. Therefore if there is any regrowth in the future the
treatment options and outcome should be greater. I continue with bi-monthly
MRIs and try to continue on as best I can. Quoting Gene Kranz Mission
Control flight Director for NASA
"Failure is not an option" meaning you can go on living a good meaningful
life with Cancer and beat the survival statistics.
I have come to refer to my disease as a fight because it was a wake-up call.
And it was not, Hey, wake up, you're going to die! Face it we all are going
to die someday. No it was "Hey, wake up, you are still ALIVE! And the
normal day-to-day grind is not being alive, for the first time in my life I
am actually living.
I can understand and relate to the late great Lou Gehrig. However I believe
that I have one up on him, and that I am the luckiest man on the face of the
earth. I have been given the time and chance to make a difference.
"Fans, for the past two weeks you have been reading about the bad break I
got. Yet today I consider myself the luckiest man on the face of this
Earth."
--Lou Gehrig, July 1939
Cancer has changed my life in so many ways I can't even believe it. Nearly
all of the changes have been for the betterment.
Update: 8/17/2006
I had my most recent MRI and Nuero logical exam on August 16, 2006. I am
still very stable, showing no signs of significant re-growth. I am still
doing great and enjoying every moment of life.
Update: 1/1/2007
No changes to report!
Scott K. L.
Clovis, CA
Questions?
Send a message to Scott!
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