Brain Tumor Survivor: Bruce B. last Updated: 6/7/2008
I'll keep this short, I promise !!!
In 1994, I was on active duty in the U.S. Air
Force, when I noticed some unusual symptoms -
numb fingers, vision problems, slobbering on my
pillow at night (disgusting!), lethargy, and a
lot of staring off at nothing. Oh, then there was the seizure.
I was misdiagnosed by the military doctors for
two years. They kept telling me that there was
nothing wrong - which was what I wanted to hear! Then there was that seizure.
I had the seizure at home, on my couch. 911 was
not called, and I came out of it OK. But, I knew
something was wrong. I found the best doctor
around - she ordered an MRI... "A large mass" ( 4th ventricular ependymoma).
Three months in the hospital. Craniotomy (99+%),
radiation (fractionated, I got the full dose - no chemo), blood clots, trachea
tube, infections, pneumonia, PEG tube, and
maybe worst of all - those military nurses! (actually, they were very good)
That was springtime, 1995
Since then, I have retired, became the
facilitator of two online support groups ( the adult ependymoma and spine tumor online support group - part of T.H.E. Brain Trust, http://braintrust.org/) ,and
co-facilitator of an in-person group here in New Jersey ( The Monmouth and Ocean County Brain Tumor Support Group). I have
been to brain tumor conferences in three states
(so far), I have written an article about BTs
that was published in a local newspaper, I have
requested my mayor declare Brain Tumor Awareness
Week for his city (which he did), I have
traveled to Washington, D.C. to speak to elected
officials about brain tumors, and maybe some
other things too (you see, I don't remember so good anymore).
I have double vision (corrected by prism
lenses), balance problems, memory problems, and
other things (I told you I forget things!)
But, I am Alive !!!
So now, I drive slower than I used to, I notice more, I enjoy every day and -
I appreciate Life !!!
Update: 6/7/2008: I was highlighted on CNN
Bruce B.
Questions?
Send a message to Bruce!
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