| Rating |
Site Name |
Description | Visited | Date Added |
|
Dana Farber Cancer Institute |
Major brain tumor center | 50663 | 04/02/03 |
|
|
South Nassau Communities Hospital Gamma Knife Center |
Gamma Knife Center | 40280 | 11/11/03 |
|
|
Meningioma Mommas |
An online support group for women with meningioma brain tumors. | 13692 | 02/27/03 |
|
|
Hospice Spiritual Resources |
This site is filled with information on how dying people teach us to live in soul. The insights are helpful for caregivers learning to identify and care for dying patients on the level of soul. | 24419 | 07/26/04 |
|
Childhood Brain Tumor Foundation |
301-515-2900 Resources | 17474 | 03/29/00 |
|
Brain TUmor Survivor |
Brain Tumour Survivor is a positive site of hope for those living with a brain tumour. A site dedicated to discussing survivorship, treatment options available now and those options on the horizon that show promise. | 7153 | 11/17/05 |
|
|
Cedars-Sinai Neurosurgical Institute |
One of the world`s preeminent neurosurgical centers for brain tumors | 74285 | 03/27/00 |
|
|
Brain Stem Glioma-Everything You didn`t want to know but should. |
By Jim Kenzig | 23227 | 04/09/00 |
|
|
Make-A-Wish |
Grants wishes for terminally ill children. The worlds largest granter of wishes! | 15188 | 03/29/00 |
|
|
The Signs of Death and How to ease a dying patient from Hospice- |
This excellent resource is a must read for those caring for terminally ill patients | 19089 | 03/27/00 |
|
|
UCLA Neuro-Oncology Program: |
A leading comprehensive brain tumor program, using molecular diagnostic & gene expression analysis to customize treatment plans. Offers patient support groups, cutting edge clinical trials and Infinity Online software to help predict clinical outcomes based on 10 years of retrospective treatment plans. | 67904 | 04/12/00 |
|
Brain Surgery Information Center |
Dr. John Mangiardi`s excellent brain surgery information page | 19578 | 03/27/00 |
|
|
Marg`s Journey |
The web diary of a 54 year old woman diagnosed with a glioblastoma multiforme brain tumour | 23897 | 01/14/01 |
|
|
Clinical Trials And Noteworthy Treatments For Brain Tumors |
Brain tumor information | 27192 | 03/26/00 |
|
|
Remembering Rachel |
A memorial site for our daughter who lost her life to a glioblastoma multiforme brain tumour | 9679 | 04/03/05 |
|
|
Kyla`s Page |
24 year old fighting brain cancer family web site | 12834 | 10/17/02 |
|
|
Jane Symons |
Follow Jane`s Progress with her fight against a GBM | 5962 | 11/18/05 |
|
|
Faith Emily Altbush |
This site is dedicated to the memory of our daughter who was taken from us by a diffuse pontine glioma. We have included a number of articles to help you understand what Faith endured, how much she meant to us and how we coped with her illness | 11153 | 01/06/02 |
|
|
A Primer of Brain Tumors from the American Brain Tumor Association |
A Patient`s Reference Manual Note Adobe PDF Reader is needed. | 14691 | 03/27/00 |
|
|
Jim Kenzig`s Astrocytoma Links |
Links for Astrocytoma | 13258 | 03/28/00 |
|
|
Corporate Angels Network Free Airfare |
This organization provides free air travel via corporate jet for ANY cancer patient who requires treatment at any nationally recognized treatment facility, without regard to their financial resources | 11931 | 03/27/00 |
|
|
Brain Tumor Medical Database |
The resource is a collection of references to the technical medical literature on all aspects of brain tumors and includes references on promising alternative therapies and current experimental treatments. | 55437 | 06/14/03 |
|
|
Scott Vickroy`s survivor story |
Aggressive treatment over 9 months included high-dose chemo and a stem cell rescue | 10468 | 03/18/02 |
|
|
young adults surviving glioblastoma |
a positive resource. stories forums links support | 9257 | 08/06/02 |
|
|
Locks of Love |
how people can donate hair for wigs for people losing hair to chemotherapy | 11844 | 10/18/01 |
|
|
Decadron By Dr. Bruce Cohen Co-director of Brain Tumor Clinic at Cleveland Clinic |
What you need to know about this often prescribed steroid drug for reducing the swelling in brain tumors. | 12117 | 03/27/00 |
|
|
Johns Hopkins Brain Tumor Radiosurgery |
Explore the latest news, treatments and outcomes for gliomas, acoustic neuromas, meningiomas, and pituitary tumors. | 20121 | 01/12/02 |
|
|
Joe`s Journey |
A web journal of Joe Vitale`s journey after being diagnosed with a low grade astrocytoma | 8339 | 01/11/02 |
|
|
CancerKids |
information, chat, hundreds of stories of childhood cancer | 17790 | 12/19/01 |
|
|
The Meningioma Radiosurgery Page at Johns Hopkins |
Meningiomas are particularly well suited for radiosurgery. | 7070 | 03/29/00 |
|
|
The ABC`s of Brain Tumors from their Biology to their Treatment |
A Primer of Brain Tumors by John R. Mangiardi, M.D. and Howard Kane Wm. | 8434 | 03/27/00 |
|
|
Megan`s Story |
Our baby girl was diagnosed with a brain tumour at 5 weeks of age. This is her story so far...... | 7118 | 05/27/01 |
|
|
The Cleveland Clinic Department of Neurosurgery and Brain Tumor Center |
World Reknowned Brain Tumor Center | 6571 | 03/27/00 |
|
|
The Brain Tumor Center at Duke in Durham, North Carolina |
dedicated entirely to the treatment and cure of brain and/or spinal cord tumors in children and adults | 9321 | 04/02/00 |
|
|
Jim Kenzig`s Brain Stem Glioma Links Page and Brain Tumor Information Links |
Best list of Links for Brain Stem Glioma Available on the Net | 7293 | 03/28/00 |
|
|
The Musella Foundation For Brain Tumor Research & Information |
516-295-4740 The organization that maintains Virtualtrials.com! | 12100 | 03/29/00 |
|
Meningiomas & Benign Brain Tumor Information Links |
From Harvard University | 7068 | 03/29/00 |
|
|
Memorial Page for Brain Tumor patients |
Virtual Memorial page to those who have died from a brain tumor | 5901 | 03/28/00 |
|
|
Astrocytoma Types and Therapy from NYU |
Patrick J. Kelly, M.D., FACDS | 8877 | 03/28/00 |
|
|
Seeking Peace: Brain Tumor Hospice Care |
Helps families decide whether it`s time for hospice, describes end-stage symptoms and tips in dealing with them, and provides a time line that may help with prognosis | 6121 | 10/29/05 |
|
|
Choices in Brain Tumor Treatment |
Jim Kenzig`s views on Brain Tumor Treatment and stance on alternative medicine | 6657 | 03/28/00 |
|
|
NCI/PDQ Physician Statement: Childhood supratentorial primitive neuroectodermal and pineal tumors |
NCI PDQ | 9083 | 03/29/00 |
|
|
Silvanlord (David Ellis) has a brain tumor. |
David Ellis, diagnosed with a pineal germinoma at 17, writes about his brain tumor. | 9326 | 10/23/02 |
|
|
Epidermoid Brain Tumor Organization |
Home of the "MOIDS" | 7857 | 03/29/00 |
|
|
Mimi`s Story: Her Journey with GBM |
A memorial diary which chronicles my mother, Charlotte`s, journey with Glioblastoma Multiforme: onset of symptoms, diagnosis, medical options, hospice care, her passing and afterwards. One woman`s story through the eyes of her daughter. | 740 | 03/13/08 |
|
|
Meningioma Support and Information |
A place for support and information on Meningiomas and their treatment | 10374 | 01/01/01 |
|
|
Heavenly Lights Children`s Memorial |
This site in an online childrens memorial dedicated to raising awarenss to childhood disease. Those that have lost a child may have a star added in their memory for free. Come out and click on the childs stars and read of their battles here on earth. | 5969 | 09/04/00 |
|
|
The Acoustic Neuroma Association |
provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves | 6898 | 03/28/00 |
|
|
Search Medline for Glioblastoma Multiforme |
Custom Search of Medline for Abstracts | 9274 | 03/28/00 |
|
|
ClinicalTrials.gov |
The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies. | 7606 | 04/03/00 |
|
|
YASG: Young Adults Surviving Glioblastoma |
We are here to inspire those young adults in their teens, twenties, and thirties, that do get diagnosed with this disease. | 6814 | 01/25/02 |
|
|
Brain Tumors: Symptoms, Therapy and Future Cure |
By Patrick J. Kelly, MD, FACS NYU | 11199 | 03/27/00 |
|
|
UCLA Neuro-Surgery Program |
The Clinical Neuroscience Program at UCLA has consistently been ranked in the top 10 in the nation. | 10724 | 04/04/00 |
|
|
Search Medline for Chordoma |
Custom Search of Medline for Abstracts | 7904 | 03/28/00 |
|
|
Drug Assistance Programs - Free Drugs! |
Tells how you can get free or reduced price drugs if you can`t afford them | 16205 | 05/25/00 |
|
|
American Brain Tumor Association |
ABTA is a non-profit,independent organization dedicated to providing research funding, education matierials and resource information and advocacy. | 6591 | 07/18/00 |
|
|
Michael T. Glass Glioblastoma Research Foundation |
a non-profit organization created to fund research and find innovative ways to battle Glioblastoma Multiforme, while also helping patients and their families that are affected by the disease. | 8548 | 11/01/02 |
|
|
Carrie`s page |
Glioblastoma Multiforme: The Gifts of an Illness | 5976 | 04/02/00 |
|
|
Brainstem Tumor Mailing List- For Patients, Caregivers, Doctors and Researchers. |
Moderated by Jim Kenzig | 10898 | 03/28/00 |
|
|
Aidan`s Web page |
A pediatric Medulloblastoma survivor | 6314 | 04/02/00 |
|
|
The National Braintumor Foundation |
800-934-CURE A not for profit organization that offers valuable resources for brain tumor patients and funds brain tumore research | 11747 | 03/27/00 |
|
|
Brainstem Gliomas from Neurology to Neuro Oncology |
A very well written page outlining brainstem gliomas, their symptoms and their treatment | 6905 | 09/03/01 |
|
|
Definition of Ependymoma |
Brief definition from St. Judes Hospital | 4677 | 03/28/00 |
|
|
M.D. Anderson Cancer Center - University of Texas |
Cancer Center | 7901 | 04/02/00 |
|
|
Sarah Dudley |
Her Journey Through Art & Poetry | 13334 | 03/16/03 |
|
|
Glioblastoma Multiforme--Case Study |
| 6675 | 03/28/00 |
|
|
Johns Hopkins Radiosurgery Center |
Great explanation and pictures! They now have fractionated stereotactic stereotactic radiosurgery available | 10647 | 04/02/00 |
|
|
Gamma Knife Radiosurgery and Immunotherapy for Brain Tumors |
All types of brain tumors and their treatments described | 37428 | 04/09/01 |
|
|
Dr. Nicholas Avgeropoulos |
Has many useful links and resources for patients and families | 18897 | 05/18/02 |
|
|
All Experts |
Experts from many fields volunteer thier time to answer questons - free of charge - on broad range of topics, like brain tumors, computers, law, love. If you have a computer problem, this is the fastest place to get an answer! | 7313 | 04/02/00 |
|
|
Shared Experience Cancer SUpport Knowledgebase |
Shared Experience is a non-profit, searchable collection of first-hand accounts by cancer patients and the people who love and care for them. It has one narrow focus: to share personal experiences of cancer survivors and provide a nexus for the recently diagnosed and others to contact one another. | 8111 | 12/05/00 |
|
|
Wigs for Kids |
wigs for kids, donations | 8655 | 03/04/03 |
|
|
Childhood Brain Tumor (PDQ®) Treatment - Patients |
Cancernet Information for patients on Childhood Brain Tumors | 9812 | 03/28/00 |
|
|
Neuro Anatomy and Pathology on the Internt-Site from Department of Neurology, University Medical School, Debrecen, Hungary |
, for physicians and medical students with mappings of the brain and excellent neurology links | 3215 | 03/27/00 |
|
|
Seeking Peace: Brain Tumor Hospice Care |
Describes a list of end-stage "signs" to watch for to prepare for death from a brain tumor | 4715 | 11/30/06 |
) to Best = 5 ( 